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Sean Jesiolowski

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What does Excentia do to enrich the lives of its individuals?

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Excentia reaches out to individuals with ASDs Empowering people with development needs, Excentia is a growing nonprofit organization with a great reputation, a respected human services presence in the Lancaster, PA. Excentia offers services to individuals with physical and intellectual disabilities, and more recently, our support services recognize Autism Spectrum Disorders (ASDs) as covered under Excentia’s umbrella of care. According to the NIMH, ASDs encompass individual difficulties in communicating with others, seeing things from another's perspective (theory of mind), and making sense of information in his or her environment. Residential Services and the Autism Support Program This Autism Support Program operates within Excentia’s Residential Services, which provides housing options, community accommodations, and support resources for its clients. Direct Support Staff and Community Inclusion Specialists, for instance, are employed within Residential Services to facilitate their client’s individual-driven growth. We help the individuals reach their own goals, and we perform the groundwork that is a day-to-day living assistance. Simple acts of service foster an individual’s independence and inclusion within the larger community. My role in the Autism Program Direct Support Staff and Community Inclusion Specialists within the Autism Support Program offer a unique set of skills and services to their clients. We must do more than merely “show up” when scheduled because we as competent staff must be aware of our individual’s particular social, emotional, and sensory needs and challenges. I remember that my clients with ASD possess a sometimes-profound understanding of their own needs and limitations. The individual’s “problem” is that a piece is apparently missing when he or she engages a challenging-to-them task, like cooking a good meal or interacting positively with peers. My job is to provide that missing piece, which can be called “presence”. “Presence” Having presence with an individual helps motivate the person with an ASD to achieve his or her own level of success and independence. Within the Autism Support Program, my clients represent a range of capabilities and diverse degrees of independence and performance. Presence with an individual means being alert to his or her particular level of functioning in a given area. This social-emotional quality is a supportive force that is felt by the client who is often not able to verbalize his or her own need for appropriate help. My presence enables me to step in or back off. To assist the individual or to refrain from assisting. It is all about what the person needs presently to perform the task at hand. I am ready to help and respond in respect with my client’s needs. Working with an individual with an ASD One of my clients is responsible for tasks like wiping surfaces, reordering his belongings, and vacuuming floors, since his apartment is comprised of four rooms which all need cleaning and organization. So during one particular session, I scrubbed bathroom surfaces alongside him. I am no cleanliness expert, but this instance required my hands-on effort, and with a curious yet concerned demeanor, he watched my cleaning progress. Thus, our joint attention, my several verbal prompts, and his conversation about my point of view, cleared a vista into my personal mental state and as well as my own expectations. My presence in this instance incited a teaching moment that reinforced my client’s theory of mind (understanding the world from another's perspective) and, of course, we bolstered his cleaning habit. Commitment to “presence” Excentia is able to support its support staff who in turn support their individuals. The management and direct support staff of this organization really want to see the growth of their clients! Indeed, one of the company’s values is commitment, a virtue that highlights the dedication that is needed to see the most profound and lasting personal growth of individuals with or without ASDs. I can see this commitment expressed in my own presence with clients on the autism spectrum, and I have seen other staff show consistency, attentiveness, and follow-through with their own clients, too. Let us persevere and mature as committed support staff! Our individuals are ready to engage, and we should be, too. by Sean Jesiolowski, Community Inclusion Specialist / Direct Support Staff

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